eurordis

@eurordisFRhost: Rhiannon WallsAnalyzed

Open on YouTube

Audience and activity

Subscribers2.0K

Views per video55median of the last 30

Views per subscriber0.03how many actually watch

Comments per video0median

Uploads per month1.5

Last upload13d ago2026-10-06

Total views338K

Total videos522

Long-form / Shorts70% / 0%

Counts come from the YouTube Data API and are refreshed regularly; medians are computed from the channel's last 30 videos.

What eurordis makes

Topics rare diseases, patient advocacy, healthcare, mental health, wellbeing

EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 300 million people living with a rare disease globally. Visit https://www.eurordis.org/ for more information.

Features other people

Recent videos

Title	Published	Views	Length
EURORDIS Patient Partnership Webinar - Integrating mental health into ERNs by VASCERN and ERN CRANIO	2026-10-06	18	75 min
ERNs on Air: The Sudden Cardiac Death Letter and patient partnership in ERN GUARD-Heart	2026-10-05	17	17 min
10 Minutes With Rhiannon Walls: Youth Leadership	2026-09-22	34	12 min
10 Minutes With Rhiannon Walls: The Rare Patient Passport	2026-07-22	109	10 min
Patient Partnership Webinar Series: Transition in Healthcare (Session 2) - ERN initiatives	2026-07-01	25	77 min
Patient Partnership Webinar Series: Transition in Healthcare (Session 1) - Setting the scene	2026-06-30	33	67 min
Living well: the mental health of people with rare diseases	2026-06-24	148	107 min
10 Minutes with Rhiannon Walls: Patient Partnership	2026-06-17	55	12 min
Listening to Experiences: The Impact of Patient Involvement in ATMP Clinical Trial Design	2026-04-15	99	118 min
10 Minutes with Rhiannon Walls: Ultra-Rare Diseases	2026-04-13	59	13 min