Friedreich's Ataxia Research Alliance

@curefaUSAnalyzed

Chronic illnessResearch & academiafriedreichs ataxianeuromuscularclinical researchhealthcarepublic awareness
Open on YouTube

Audience and activity

Subscribers1.9K
Views per video261median of the last 30
Views per subscriber0.14how many actually watch
Comments per video1median
Uploads per month1.4
Last upload3d ago2026-10-13
Total views268K
Total videos168
Long-form / Shorts80% / 0%

Counts come from the YouTube Data API and are refreshed regularly; medians are computed from the channel's last 30 videos.

What Friedreich's Ataxia Research Alliance makes

Topics friedreichs ataxia, neuromuscular, clinical research, healthcare, public awareness

FARA's Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases. Friedreich’s ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's ataxia.

Features other people

Recent videos

TitlePublishedViewsLength
An Informational Webinar with Lexeo Therapeutics: September 25, 20262026-10-1326528 min
Community Conversations: FDA’s Accelerated Approval Pathway – Aug 20, 20262026-08-2540835 min
An Informative Webinar with PTC Therapeutics: June 22, 20262026-07-0747452 min
An Informational Webinar with Lexeo Therapeutics: May 4, 20262026-06-1931227 min
Community Conversations: Late Onset FA — March 31, 20262026-06-0331961 min
An Informational Webinar with Solid Biosciences: May 26, 20262026-06-0134042 min
FARA Flash Talks 2026 – Session 22026-05-2225656 min
FARA Flash Talks 2026 — Session 12026-05-1125758 min
An Informational Webinar with Larimar Therapeutics — March 20, 20262026-04-061.2K20 min
The FARA Fundraising Hub2026-03-10542 min

Contact Friedreich's Ataxia Research Alliance

Email none found in the channel description

YouTube youtube.com/@curefa

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